Webinars

Webinar 1 – January

Topic : The Brain in TSC: Core Neurological Challenges

This webinar focuses on the most highly-rated topics, which are all related to the neurological and neuropsychiatric aspects of Tuberous Sclerosis Complex.

 Speakers: Dr Saurabh Chopra, Pediatric Neurologist
                    Dr Pradnya Gadgil, Pediatric Neurologist
                    Dr Pranathi Gutta, Pediatric Neurologist
                    Parul Sheth, Patient Advocate
Date : January 18, 6pm – 8pm
Webinar 2 – February

Topic :Medical Management and Systemic Health

This session covers key medical issues beyond the brain, focusing on targeted therapies and essential healthmonitoring.

 Speakers: TBD, Pediatric Neurologist
                     TBD, Pediatric Nephrologist
                     TBD, Pediatric Dermatologist
                     TBD, Pediatric Cardiologist
                     TBD, Patient Advocate
Date : TBD
Webinar 3 -March

Topic: Support Systems for the TSC  Journey

This webinar is tailored for caregivers, focusing on navigating stress, accessing support, and sharing experiences.

 Speakers: TBD, Patient Govt Advocate
                     TBD, Senior Parents
                     TBD, Parents
                     TBD, Patient Advocate
Date : TBD
Webinar 4 -April

Topic: The Future of TSC: Research and  Advocacy

This session looks ahead at the evolving landscape of International TSC care, from scientific breakthroughs to community-led initiatives

 Speakers: TBD, International Pediatric Neurologist
                     TBD, Director, International Affairs
                     TBD, Parent
                     TBD, Patient Advocate
Date : TBD
Webinar 5 – May

Topic: Daily Life and Challenges

A practical session focused on therapies, and managing common day-to-day challenges like challenging behaviours, sleep.

 Speakers: TBD, International Child Psychiatrist
                     TBD, Pediatric Neurologist
                     TBD, International Child Psychologist
                     TBD, Patient Advocate
Date : TBD
Webinar 6 – June

Topic: Therapeutic Strategies

A practical session focused on therapies, like occupational, sleep, early interventions.

 Speakers: TBD, International Speech / Language Therapist                 
                     TBD, Occupational Therapist
                     TBD, Development Psychologist
                     TBD, Patient Advocate
Date : TBD
Webinar 7 – July

Topic: Foundational

This webinar is designed for newly diagnosed families and for those supporting young adults, covering foundational knowledge.

 Speakers: TBD, Neurologist                 
                     TBD, Clinical Geneticist
                     TBD, Child Psychologist
                     TBD, Patient Advocate
Date : TBD
Webinar 8 – August

Topic: Wellness and Planning

This session covers important but lower-ranked topics related to school support ,holistic health and long-term financial planning.

 Speakers: TBD, Financial Planner                 
                     TBD, Educational Specialist
                     TBD, Pediatric Nutrition Therapist                     
                     TBD, Patient Advocate
Date : TBD
Webinar 9 – September

Topic: Life Skills for Adulthood

This webinar is designed for newly diagnosed families and for those supporting young adults, covering foundational knowledge and the transition to independence.

 Speakers: TBD                         
                     TBD
                     TBD                     
                     TBD, Patient Advocate
Date : TBD