About Us

The TSC Alliance India is a dedicated non-profit organisation committed to doing everything it takes to improve the lives of individuals and families affected by Tuberous Sclerosis Complex (TSC) across the country. Our mission spans multiple areas of impact: advancing research, strengthening standards of care, expanding access to critical services, and advocating for the rights and needs of everyone touched by this lifelong condition.

At the heart of our work is the vibrant and resilient TSC community. The collective strength of individuals, caregivers, parents, and families forms the foundation of our efforts. Their lived experiences guide our priorities, and their involvement ensures that our initiatives remain meaningful, practical, and driven by real-world needs.

We also value the power of collaboration. Partnerships with medical experts, hospitals, researchers, and fellow organisations amplify our ability to make lasting change. Together, we work to ensure that every person navigating the TSC journey receives accurate information, compassionate support, and renewed hope at every step.

Based in Hyderabad, India, the TSC Alliance India has successfully grown into a nationwide network, connecting parents and eminent doctors from across regions. Through this strong and ever-expanding community, we continue striving toward a future where no family faces TSC alone.

Mission

To ensure caregivers and patients are informed, empowered and connected for better management of Tuberous Sclerosis Complex.

Vision

To create a future where everyone affected by tuberous sclerosis complex can live their fullest lives. – “TSC Alliance”

Values

We’re passionate about what we do, ambitious in our goals, and always honest and trustworthy in our approach. We’re committed to being sustainable, ensuring the TSC Alliance India remains strong and impactful for years to come

TSC Alliance India is here to help:

  • Provide information to caregivers, patients, hospitals, schools and other involved institutions about TSC
  • Educate caregivers and patients about management of TSC
  • Organise events, seminars for knowledge exchange with medical professionals
  • Create a support system in form of online networks as well as regional chapters to share experiences on TSC management
  • Advocate to improve access to best clinical practices
  • Support TSC research activity in India

We work closely with TSC Alliance,USA (www.tscalliance.org) and are a member of their Global Alliance Program. TSC Alliance India is also a member of TSC International (www.tscinternational.org)